Friday, March 21, 2008

Status and Reschedule

hola peeps! liver transplant evaluation has been rescheduled for April 7th. again its a 3 day evaluation where we meet with about a dozen or so doctors. status on other stuff...mark had a ct scan last week and it showed the liver tumors have not signifigantly grown. we meet with the oncologist March 31rst to formally review scans but we read the report ourselves and that is what the report bascially said. still going back n' forth with insurance about a drug called nexovar that our oncologist would like us to take. and we are still trying to get insurance referral and approval to see a hepatologist at ucla that will monitor mark's liver function until he gets a transplant.
i have been reading a book called In An Instant about Bob Woodruff, the abc news anchor, that had a critical brian injury that occured when he was reporting in iraq & his team was attacked by a bomb. its a recount of the events from both his wife and his perspective. great book. highly recommend- its great at explaining what it feels like when the rug is ripped out from under you. my favorite part so far is when her friend tells her straight up "this sucks". mark is reading the book A New Earth and says its a very interesting perspective on the world and people.

below are a few quotes my sis-in-law, andrea, had shared with me last week:

The only courage that matters is the kind that gets you from one moment to the next. ~Mignon McLaughlin
Some days there won't be a song in your heart. Sing anyway. ~Emory Austin
If you're going through hell, keep going. ~Winston Churchill
When you come to the end of your rope, tie a knot and hang on. ~Franklin D. Roosevelt

Fear can keep us up all night long, but faith makes one fine pillow. ~Philip Gulley
Every evening I turn my worries over to God. He's going to be up all night anyway. ~Mary C. Crowley

3 comments:

Anonymous said...

Glad to hear the evaluation is now rescheduled and you are sort of "back on track". I will be sending up special prayers for the approval to see a hepatologist. It seems to me that his monitoring of Mark's liver function while waiting for a transplant would be really important. Sometimes I really wonder about insurance companies...well maybe not sometimes but always! I like the quotes...all good things to think about and remember. Hang in there, keep keeping us all informed of what's what. I love you all so much.

Love, Mom

Anonymous said...

Good News. I have another quote for you. When life hands you lemons,squeeze them in someones eyes. LoL. I love you both so much. Take care and continue being strong. Love,Sissy

Anonymous said...

Jay wanted to add a quote as well. Some people are like slinkys, they really dont serve a purpose but it puts a smile on your face when you push them down the stairs. LOL