Ok we were at our UCLA oncologist for a routine check up on Wednesday morning. I was hitting these big speed bumps in their parking garage and I called out to Mark "hang onto your pancreas!". We almost died laughing at ourselves. Speaking of UCLA Mark heard from the coordinator in the Liver Transplant Center this week. She informed him that they realized they forgot to book him for 3 more tests he needs for the liver transplant evaluation. So he is working with his insurance to get those scheduled. So many tests...so little time. She also informed him that most likely he will get the rating of an 8 from UNOS (the organ transplant national committee), he needs a 28 to qualify to receive a liver transplant. Which of course is discouraging. Its such a long story as to why he is only an 8 but I am going to try to make it brief. Cancer tumors don't effect the functionality of the liver until there is like a million tumors. So she said UCLA will probably reach out to UNOS and plead Mark's case on his behalf in an effort to bump him up on the list... etc etc. Really if its not one road block its another. We are amazingly taking them all in stride because we have learned through our Eckhart Tolle "A New Earth" that you can't worry a problem away.
Otherwise Mark's feet and hands are doing better on the lower dose of Nexovar. He has this weird foot nerve pain but its way better than the sores. They have him taking all the pills in the morning which is making the fatigue you get from these pills more intense, for example, he fell asleep in the Vons parking lot yesterday. Clearly he is tired.
Otherwise, we are doing good. ...and the beat goes on and on.
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I know what you mean about the bumps in the parking lot ! I remember picking Mark up from his Pancreas surgery and each time we went over a bump I thought his scar was going to burst open ! I just hope that my sneaky Mocha Latte treat was a soothing distraction :) xx
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