Monday, October 26, 2009

Back On The List

I just got an email from my transplant coordinator this morning letting me know I am back on the liver transplant list. They placed me back at a 25 which is where I was before this whole ordeal. My next checkup is due at the end of January where, if everything is good, I will be bumped up to a 27.

And by the way, 27 is the new 25. When we were first getting on the list a year ago, the average transplant score was between 25 and 27. Those numbers fluctuate depending on the number of livers available in our region. So now a year later, the average transplant score at UCLA is around 28-29. So thus, in January when I move to a 27 I am really just barely keeping up with inflation. Oh well, it just means it will probably be another year before I get the transplant. I've got lots of things to do in the mean time anyway. And right now I am just happy to be back on the list. That's enough for me. Jenna and I were just saying how this feels like someone just told me my cancer is gone. I guess because this is really my only chance at making that a reality.

So what good came out of all of this? Before these troubles I was very unsure about weather I really wanted to do this surgery because it really is a gamble. But now, having it taken away, I'm pretty sure this is what I want to do. It still sucks to have to go through another big surgery but I'm not going to stress about it as much. I have a little more peace of mind.

Jonathan's 2nd birthday is in a few weeks. There was a time when we thought I wouldn't be here to see it. But here I am doing just fine. My big goal has been to make it till he is 3 because that is the age when children develop long term memory and I just want him to remember me. Well now that is just a year away and seems like it will be pretty easy to reach. Along the way we are just going to enjoy the time we have. And if all goes to plan, I will be around much much MUCH longer then that.

Till next time,



Bubbl3s said...

take care! =)

Anonymous said...

I can not believe it has been 2 years.I know I speak for everyone when I say I am so glad you are here in this world with Jenna and the little man.I am so sorry you all have to go through this, but I have no doubt you will be here for a long time to come. You and your family are in my prayers every night. God knows this world is a better place with you in it.
Much Love,