We are happy to report they asigned Mark a 22. UCLA had 2 conference calls with UNOS on Friday. They delibrated and reviewed everything. Basically questioning if Mark was even a good candidate for liver transplant. And asked that UCLA pull data, studies, and to discuss all scenarios. It was nerve racking as we waited in between the calls. UNOS really wanted to review everything. And make sure that transplant really was the best and most appropriate option. In the end we got the 22 so we are happy. There is just minimal info about this cancer and transplant and outcome etc. But to be honest I rather it be like that. Not really knowing is so much better. Trust us, not knowing is better. It boils back to that simple question we have all aked ourselves...would you want to know when you are going to die? Trust us you DON'T!!!
We like our plan for transplantation and we know that the cancer won't come back--- so we live like that. Plan and simple.
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Well the real magic number is probably going to be 28 but 22 is a mircle since we started that faitful day- that first day- when the doctor walked out, we walked in and amoungst all the emotion you told dad you had 4 months...miracles do happen since this Thanksgiving, it is one whole year later and you are a 22,,,as that one doctor said, he doesn't count days, and yes it is better to not know as we have found out that first day...congradulation on receiving one more miracle that we may have to wait await awile but your and your family are ALIVE and well--in the "now", not in the past or fearful of the future (2Tim:1:6), but are living god's mircle watching little J. WALKING for the first time and planing Christmas knowing life is ahead of you...keep the "crap" in the attich and visit the mission, and love your family for there is nothing but life ahead of you all. Happy Thankgiving and plan for a very merry Christmas. I love you all and you KNOW, I wil forever stand by you son.....Dad
I can't wait to meet your little guy and Mark in the summer, b/c with your outlook, things will be ok!
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