At last!!!

Hi friends, yes we truly suck at updating the blog. We got out of habit. Typing with one hand while jonathan sleeps on my lap. So we are waiting for ucla to reconfirm the blue shield confirmation. Basically everyone confirming that they confirmed. And we aren't yet on the UNOS list. We still float here in this holding pattern knowing that we probably won't get a liver transplant for awhile is our guess. So we continue the chemo and have another ct scan in a couple of weeks to mark any changes. Which we dread the possibility of any bad results and are hoping for good news. These scans test are nerves. But we remind ourselves that the chemo per the doctors will lose its steam hence the real reason for a transplant. Same ole' stuff really. We are griped in this massive holding pattern. Its cool we are having fun and savoring the last days of summer.