Wow... That's a lot of ouwies !!!

"That's a lot of ouwies" Dylan McCullogh Feb. 16, 2008.

That was the quote of the weekend. As Uncle Mark lifted his shirt to show Dylan his scar and to explain why he was "fragile". Phew Dylan was super sweet and checked it out. I really have come to admire kids. Being the quintessential planner, I have already wondered how or when Jonathan will kinda grasp all that had surrounded and changed his world when he was only 13 days old. Will he understand all of this or does he even really ever need to know? All I have to say is, if my son sleeps in our bed or isn't potty trained til' he's 4 yrs old... please cut me some slack.

Mark wasn't a baby himself this week. He pressed on, got another chemo shot in his tiny bootie, hobbled around the mall and into our work one day and tonight we enjoyed sushi (take-out) with Jeremy. We have an appointment with Dr. Singh this Tuesday--- we will fill her in and we are seeing her to get more pain meds and an insurance referral to a UCLA Hepatologist and a G.I. doctor.

Wrapping up the week with a pretty bow!

All and all we liked to give this week two thumbs up. The baby went to bed at like 8 or 9 each night (he still woke up like every 2-4 hrs to suck down a bottle but he didn't pitch a massive fit all evening like he had been..YES!). Work was all about change as my Ops Room was repurposed displacing me temporarily to another office and a new office-mate (and super close to Tammy's desk!!! fun fun fun)... change is always good right? Our UCLA doctor appointments were not epically informative, but confirmed we were on the right path and biopsy reports indicated from the tumor they removed from Mark that we are fighting the cancer suspected (I was waiting for them to come back and say "oh sorry you are fighting that crazy, aggressive cancer that the doctors originally diagnosed us with" so now I can breathe knowing time is on our side - PHEW). Mark's "cool" 36 stapes were removed and replaced with not so "cool" tape. ...And the church hooked us up with yummy meals each evening- anyone who helps me plump up my Mark is a friend of mine. So all and all I hope you feel as satisfied with your week as we are with ours.

Blog Slackers

Lisa told me I am now a blogger...feel very hip (once she explained to me what that was). So now I blog...

Long weekend. Settled in. Realized that hospitals are no fun but they did wait on us hand and foot (that is the saying, right?). Mark is moving around really well. He did go awall once on me, and walked to the Old Navy around the corner from us, and I freaked out on him and made him promise not to ever do it. He is very bored and is pondering taking the city bus to get around since he can't drive yet. "nobody walks in L.A." but the bus ... seriously people he must be bored.

Otherwise, we are doing a lot of eating. We need to fattin' him up. I swear Mark is now known as the skinny one of the two of us and I just can't be married to a man with a smaller bootie than mine! HAHA. So like that book I keep wanting to read we continue to "Eat, Love and Pray".

2 UCLA doctor appointments tomorrow ... stay tuned.

The Guts Of It

Here is a picture of my spleen and pancreas. I asked the doctors to take a picture while I was in surgery and they were nice enough to comply. I've Photoshoped the original so as not to gross anyone out. I also have a picture of my abdomen while they were cutting away. It's pretty cool. My plan is to come up with some kind of look I like and have a set framed. I will probably wait till I can get a picture of my liver to go with it. This was one quick attempt at doing that. I have a feeling I will be messing around with this quite a bit.

Smiley :)

Yea Daddy is Coming Home !!!

Jonathan is all smiles because Mark is coming home. Jonathan and I are so excited!!! Anna (our westside connection) is picking him up for the hospital right NOW.Publish Post

One Flew Over the Koo Koo's Nest

Totally sucks. Mark has to stay at the hospital one more day. If they don't get him out soon I think he is going to need to be moved down to the Psych Ward. He is feeling good though. They put him onto the MS Contin that he normally takes at home and that is managing his pain. So now we just wait. If they don't let him out tomorrow, Jeremy and I will start to picket in front of the hospital :)